Multiple Sclerosis is a debilitating disease with no cure. It is often called the "silent or invisible disease". I am a ...
Multiple Sclerosis is a debilitating disease with no cure. It is often called the "silent or invisible disease". I am a ...
Hi Frog, just found this thread...
I guess I could say I'm a "Kinda Karegiver"... There is a cantankersous old guy (like me) in my church who has had MS for some time now. Once, a few years ago, he expressed an interest in participating in the monthly men's breakfast outing (more of a "Gee, I wish I could go" kinda thing and I said "Why not?") and we've been doing breakfasts since. Sometimes we go where the church men are going and sometimes we go off our own. He has a full-time caregiver, but often I find myself in that role and have emptied foley bags, helped fix the lift over his bed, all that behind-the-scenes stuff.
He gets around in a super-deluxe wheel chair (that weighs six tons) so when we go out, he has to transfer to a good old fashioned chair that I can toss in the back of the van once he gets situated in the front seat. We're pursuing van ramps with the VA so he can take the big chair and I can just roll it in the middle.
He's an active member of a group here in San Antonio called LAMS (Life After MS) and I'm not sure if that's local or a chapter of something national, but it's another good outlet that keeps him active (and cantankerous)...
What I'm doing is small potatoes, BF, compared to what you are doing, but it has given me a good look inside the world of MS and an understanding of what someone with MS deals with daily.
De Colores!
Hi Frog, just found this thread...
I guess I could say I'm a "Kinda Karegiver"... There is a cantankersous old guy (like me) in my church who has had MS for some time now. Once, a few years ago, he expressed an interest in participating in the monthly men's breakfast outing (more of a "Gee, I wish I could go" kinda thing and I said "Why not?") and we've been doing breakfasts since. Sometimes we go where the church men are going and sometimes we go off our own. He has a full-time caregiver, but often I find myself in that role and have emptied foley bags, helped fix the lift over his bed, all that behind-the-scenes stuff.
He gets around in a super-deluxe wheel chair (that weighs six tons) so when we go out, he has to transfer to a good old fashioned chair that I can toss in the back of the van once he gets situated in the front seat. We're pursuing van ramps with the VA so he can take the big chair and I can just roll it in the middle.
He's an active member of a group here in San Antonio called LAMS (Life After MS) and I'm not sure if that's local or a chapter of something national, but it's another good outlet that keeps him active (and cantankerous)...
What I'm doing is small potatoes, BF, compared to what you are doing, but it has given me a good look inside the world of MS and an understanding of what someone with MS deals with daily.
De Colores!
I guess I could say I'm a "Kinda Karegiver"... There is a cantankersous old guy (...
Hi Frog, just found this thread...
I guess I could say I'm a "Kinda Karegiver"... There is a cantankersous old guy (...
Arky ..
The gift of friendship that your are doing for your friend is more uplifting and beneficial to your friend than all the support groups and Rx and doctors "combined" can give him..!
You give him "a shot of life" and he gets to feel wanted and needed !
About the van ramp ..I have found that our 6 foot, fold in half, aluminum ramp is great for me getting Y-von's power chair into the back of the van.
Take care
Froggy
Arky ..
The gift of friendship that your are doing for your friend is more uplifting and beneficial to your friend than all the support groups and Rx and doctors "combined" can give him..!
You give him "a shot of life" and he gets to feel wanted and needed !
About the van ramp ..I have found that our 6 foot, fold in half, aluminum ramp is great for me getting Y-von's power chair into the back of the van.
Take care
Froggy
froggy, it is lovely here and feels like spring is coming I am sending cyber hugs to you and mrs. froggy. Peace and bl...
froggy, it is lovely here and feels like spring is coming I am sending cyber hugs to you and mrs. froggy. Peace and bl...
Yeah, I decided it was very calming plus I think I am having an identity crisis--but for now, I like calm.
I heard birdies chirping today, froggy! Can't wait till my little froggy friends down by the pond start greeting us
thanks for the hugs
:-)
Yeah, I decided it was very calming plus I think I am having an identity crisis--but for now, I like calm.
I heard birdies chirping today, froggy! Can't wait till my little froggy friends down by the pond start greeting us
thanks for the hugs
:-)
Thank you, BadFrog. I'll pass it on. I know from my own experience with a debilitating, life-threatening disease that m...
Thank you, BadFrog. I'll pass it on. I know from my own experience with a debilitating, life-threatening disease that m...
On transplant programs, you are also forbidden herbal or homeopathic remedies of any kind. One reason for this is that the effects of these herbs have never been adequately researched with respect to other drugs or herbs. Prograf (anti-rejection drug) is a derivative of a fungus (?) grown on Mt. Fuji. They have no conclusive knowledge of how other "natural" items, including herb teas, are compatible with it.
On transplant programs, you are also forbidden herbal or homeopathic remedies of any kind. One reason for this is that the effects of these herbs have never been adequately researched with respect to other drugs or herbs. Prograf (anti-rejection drug) is a derivative of a fungus (?) grown on Mt. Fuji. They have no conclusive knowledge of how other "natural" items, including herb teas, are compatible with it.
Thank you, BadFrog. I'll pass it on. I know from my own experience with a debilitating, life-threatening disease that m...
Thank you, BadFrog. I'll pass it on. I know from my own experience with a debilitating, life-threatening disease that m...
Pru ..
Thanks ..good insight and as with all medications..Rx or herbal or otherwise, "they contain" chemicals.
How these chemicals interact is virtually unknown.
Y-von has read many articles on "last chance cures" for MS. None have any proven or broadly recognized therapy impact.
Imagine ..one miracle drug .."drink your own pee"..!~ "yuk & dbl yuk"
Thanks again ..
Froggy
Pru ..
Thanks ..good insight and as with all medications..Rx or herbal or otherwise, "they contain" chemicals.
How these chemicals interact is virtually unknown.
Y-von has read many articles on "last chance cures" for MS. None have any proven or broadly recognized therapy impact.
Imagine ..one miracle drug .."drink your own pee"..!~ "yuk & dbl yuk"
Thanks again ..
Froggy
Posted: Mar 14, 08 4:30am
Multiple Sclerosis is a debilitating disease with no cure. It is often called the "silent or invisible disease". I am a ...
Hi Frog, just found this thread...
I guess I could say I'm a "Kinda Karegiver"... There is a cantankersous old guy (like me) in my church who has had MS for some time now. Once, a few years ago, he expressed an interest in participating in the monthly men's breakfast outing (more of a "Gee, I wish I could go" kinda thing and I said "Why not?") and we've been doing breakfasts since. Sometimes we go where the church men are going and sometimes we go off our own. He has a full-time caregiver, but often I find myself in that role and have emptied foley bags, helped fix the lift over his bed, all that behind-the-scenes stuff.
He gets around in a super-deluxe wheel chair (that weighs six tons) so when we go out, he has to transfer to a good old fashioned chair that I can toss in the back of the van once he gets situated in the front seat. We're pursuing van ramps with the VA so he can take the big chair and I can just roll it in the middle.
He's an active member of a group here in San Antonio called LAMS (Life After MS) and I'm not sure if that's local or a chapter of something national, but it's another good outlet that keeps him active (and cantankerous)...
What I'm doing is small potatoes, BF, compared to what you are doing, but it has given me a good look inside the world of MS and an understanding of what someone with MS deals with daily.
De Colores!
Posted: Mar 14, 08 6:47am
Hi Frog, just found this thread...
I guess I could say I'm a "Kinda Karegiver"... There is a cantankersous old guy (...
Arky ..
The gift of friendship that your are doing for your friend is more uplifting and beneficial to your friend than all the support groups and Rx and doctors "combined" can give him..!
You give him "a shot of life" and he gets to feel wanted and needed !
About the van ramp ..I have found that our 6 foot, fold in half, aluminum ramp is great for me getting Y-von's power chair into the back of the van.
Take care
Froggy
Posted: Mar 16, 08 9:26am
Multiple Sclerosis is a debilitating disease with no cure. It is often called the "silent or invisible disease". I am a ...
froggy, it is lovely here and feels like spring is coming I am sending cyber hugs to you and mrs. froggy. Peace and blessings to you.
Roxley
Posted: Mar 16, 08 11:05am
froggy, it is lovely here and feels like spring is coming I am sending cyber hugs to you and mrs. froggy. Peace and bl...
Hi Roxey ...Thank You .. (({{}})) hugs right back ..!!
Humm .."here"..?? Ahhh ..I see, your in the Blue Ridge Mountians again !!
Ha Ha
Froggy
Posted: Mar 16, 08 12:15pm
froggy, it is lovely here and feels like spring is coming I am sending cyber hugs to you and mrs. froggy. Peace and bl...
Yeah, I decided it was very calming plus I think I am having an identity crisis--but for now, I like calm.
I heard birdies chirping today, froggy! Can't wait till my little froggy friends down by the pond start greeting us
thanks for the hugs
:-)
Posted: Mar 21, 08 5:30am
Thank you, BadFrog. I'll pass it on. I know from my own experience with a debilitating, life-threatening disease that m...
On transplant programs, you are also forbidden herbal or homeopathic remedies of any kind. One reason for this is that the effects of these herbs have never been adequately researched with respect to other drugs or herbs. Prograf (anti-rejection drug) is a derivative of a fungus (?) grown on Mt. Fuji. They have no conclusive knowledge of how other "natural" items, including herb teas, are compatible with it.
Posted: Mar 21, 08 5:37am
Thank you, BadFrog. I'll pass it on. I know from my own experience with a debilitating, life-threatening disease that m...
Pru ..
Thanks ..good insight and as with all medications..Rx or herbal or otherwise, "they contain" chemicals.
How these chemicals interact is virtually unknown.
Y-von has read many articles on "last chance cures" for MS. None have any proven or broadly recognized therapy impact.
Imagine ..one miracle drug .."drink your own pee"..!~ "yuk & dbl yuk"
Thanks again ..
Froggy