Posted: Sep 23, 08 3:50pm

Make sure to add your name to the Sarcoma Foundation of America Patient Registry. There is currently no universal database that provides access to the information on sarcoma patients, including desmoid tumor patients. This makes it challenging for public or private researchers to gather enough data to fully study genetic pathways and identify therapeutic candidates. The Sarcoma Foundation of America hopes to address this issue by creating a comprehensive Sarcoma Patient Registry that will track the progress of patients with all forms of sarcoma.

Go to www.dtrf.org and follow the link at the bottom of the page to register.